One of the first things I did after the birth and death of Corva, was seek out support. I wanted to know–no I needed to know–that there were others surviving this nightmare. The hospital had given me contact information for a local support group, but I actually knew of the group’s existence prior to my loss. As a WIC nutritionist, I referred clients to the group, not frequently, but often enough considering the 1 in 4 statistic. I didn’t really know what the group did though.
The support group in my area specific to baby loss welcomes bereaved parents who have lost a baby at any gestational age, and after birth up until age one. They meet monthly. The first meeting post loss arrived ten days after Corva’s delivery. I went, though it was the same day that earlier, in my grief stricken state, I left my purse in a friend’s car and it was stolen (the purse, not the car). So it had been an exhausting day, complete with a panic attack and a police report. There was one person at the group that night–Elisha–and I found immediate comfort from her. She sat with me for over an hour and for that I am forever grateful.
After that initial meeting, I attended four more meetings. I also went with several other moms to get coffee, attended a butterfly release and a social dinner out. In October I attended a remembrance walk for infant loss awareness month.
Then I started to feel angry and frustrated.
First there was the prayer. Now, I’m not a stranger to prayer; after all I pray everyday, to a God I ambiguously believe in, that I will die before my eldest daughter. At this walk in October, a board member of the support group, we’ll call her Jenny, said some touching words then invited her husband to say a prayer before the walk. This fueled so much anger within me.
Then I started reflecting on the stories. I’m not saying that my loss is worse or greater or more painful than anyone else’s. I only say the following because I cannot relate to these losses. Each month at support group, we went around the circle, saying our name and “as much of your story as you wish to share.” I got so tired of hearing those stories. (All names have been changed). There was Ashley, one of the leaders, who portrays her loss as further along than it actually was. Jenny, who lost her daughter with congenital defects at 19 weeks. Shaina, who delivered prematurely due to complications of preeclampsia at 23 weeks but whose son lived for 10 days. Tara who experienced an ectopic pregnancy in the first trimester. And Elisha who lost her beautiful twins at 20 weeks due to an infection.
And then there is me. Me, who carried my beautiful wanted baby for 40 weeks. Me, who had no complications during that time. Me, whose baby was healthy and growing (until she wasn’t). Me, whose baby lived only inside me, who did not get any sort of acknowledgment of life.
Elisha was the mother who was present at my first meeting. She was the one who was there for me, the one I connected with by default. On that unusually hot day in May, she was the one who watched my tears fall, who listened without judgement. She was the one who demonstrated survival.
Elisha’s story is complex–and it’s not mine to share. And, although, I am thrilled that she is carrying a successful pregnancy, it hurts to no end that she is due May 5, 2018–almost exactly one year (May 8, 2017) after my due date for Corva. I just can’t bring myself to watch her growing belly each month at a support group for infant loss.
So I stopped going.
Tell me about your in-person support groups.